Post by Love Is Blue on Mar 29, 2012 16:03:02 GMT -5
Hello, my lovely second family!
I apologize for being so blunt in my title, I would just like to ask all of you to take a look at this. No, Cillian Murphy is not involved in anyway, I'm sorry. XD
My sister, Emma has a very rare disease called Mastocytosis. She was diagnosed with it a few years back, and it has affected her life in many ways.
"A rare disease characterized by the presence of too many mast cells in various organs and tissues. Mast cells are connective tissue cells which release chemicals including histamine that are very irritating and cause itching, swelling, and fluid leakage from cells." In English, Mastocytosis is when too many mast cells are clouding various organs and tissues of our body. Lets say, when you get bit by a mosquito or another nasty little bug, you know how it turns red and itches? That is all of the mast cells trying to heal the infection. Mast cells usually die off after healing, but with Mastocytosis it is different. The Mast cells don't die off, and a lot more mast cells are produced. This can cause hives, blisters, low iron, angioedema, bone pain, cognitive difficulties and even anaphylaxis. It is a life threatening disease, and has caused my sister a lot of difficulty with her everyday life.
Some of the triggers that can cause hives, blisters, low iron, etc. for Emma: heat, cold, change in temperature, pressure, viral infections, humidity, foods high in histamine and many medications. You know how a person could be allergic to peanuts or dogs? My sister is allergic to all of these things.
So far, a cure has not been found for Masto. My sister takes many different medications to help her, and she carries around an epi-pen with her at all times. But on May 10th, 2012, my family and Emma's elementary school will be hosting a fundraiser to help produce an educational video on the complex nature of Masto. There will be a silent art auction, different musicians performing, and many other events that will be around the school in hope to raise money to spread awareness.
You guys on this forum have always been a wonderful help. As I said, you guys are my second family, and I am so proud to be apart of this forum. I was wondering, if you could all spread the word about this to your friends and family, we might be able to find a cure eventually. The more people who know the better, right? I am not asking any of you to donate, I couldn't ask for that, but if you could spread the word, Me, my family, and other Masto Patients would be so grateful.
Here is our web page for the fundraiser, and for more information on Masto please visit this site:
mastocytosis.ca/
luxton-art-of-giving.tumblr.com/
I know some AMAZING artists on this site. If you would be intersested in dontating some art for the auction, I couldn't be more thrilled! I am not trying to force this all down you throats. You do so much for me already, I couldn't ask for more, so please don't take this as if I'm begging, haha. If you are interested, though, you can contact me at wheatleycore@hotmail.ca . Thank you SO much! <3
I know that many of you don't live ANYWHERE near Manitoba, Canada, but I thought that I could spread the word. Thank you SO much for taking the time to read this, I luv joo guise! (i needed to use internet talk, so much seriousness is bad for my head XD)
~Blue
I apologize for being so blunt in my title, I would just like to ask all of you to take a look at this. No, Cillian Murphy is not involved in anyway, I'm sorry. XD
My sister, Emma has a very rare disease called Mastocytosis. She was diagnosed with it a few years back, and it has affected her life in many ways.
"A rare disease characterized by the presence of too many mast cells in various organs and tissues. Mast cells are connective tissue cells which release chemicals including histamine that are very irritating and cause itching, swelling, and fluid leakage from cells." In English, Mastocytosis is when too many mast cells are clouding various organs and tissues of our body. Lets say, when you get bit by a mosquito or another nasty little bug, you know how it turns red and itches? That is all of the mast cells trying to heal the infection. Mast cells usually die off after healing, but with Mastocytosis it is different. The Mast cells don't die off, and a lot more mast cells are produced. This can cause hives, blisters, low iron, angioedema, bone pain, cognitive difficulties and even anaphylaxis. It is a life threatening disease, and has caused my sister a lot of difficulty with her everyday life.
Some of the triggers that can cause hives, blisters, low iron, etc. for Emma: heat, cold, change in temperature, pressure, viral infections, humidity, foods high in histamine and many medications. You know how a person could be allergic to peanuts or dogs? My sister is allergic to all of these things.
So far, a cure has not been found for Masto. My sister takes many different medications to help her, and she carries around an epi-pen with her at all times. But on May 10th, 2012, my family and Emma's elementary school will be hosting a fundraiser to help produce an educational video on the complex nature of Masto. There will be a silent art auction, different musicians performing, and many other events that will be around the school in hope to raise money to spread awareness.
You guys on this forum have always been a wonderful help. As I said, you guys are my second family, and I am so proud to be apart of this forum. I was wondering, if you could all spread the word about this to your friends and family, we might be able to find a cure eventually. The more people who know the better, right? I am not asking any of you to donate, I couldn't ask for that, but if you could spread the word, Me, my family, and other Masto Patients would be so grateful.
Here is our web page for the fundraiser, and for more information on Masto please visit this site:
mastocytosis.ca/
luxton-art-of-giving.tumblr.com/
I know some AMAZING artists on this site. If you would be intersested in dontating some art for the auction, I couldn't be more thrilled! I am not trying to force this all down you throats. You do so much for me already, I couldn't ask for more, so please don't take this as if I'm begging, haha. If you are interested, though, you can contact me at wheatleycore@hotmail.ca . Thank you SO much! <3
I know that many of you don't live ANYWHERE near Manitoba, Canada, but I thought that I could spread the word. Thank you SO much for taking the time to read this, I luv joo guise! (i needed to use internet talk, so much seriousness is bad for my head XD)
~Blue